Sunday, September 6, 2009

Tests May Predict Success of Drugs with Lung Cancer Patients

Reuters published an article today about tests that may help medical providers determine which lung cancer treatments would be most effective for specific patients. The article was based on two studies published this week. If the findings prove to be valid it could mean better treatment options and decreased costs for lung cancer patients.


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Questions to Ask Your Doctor About Mesothelioma

When you or a loved one is diagnosed with mesothelioma, lung cancer, or any other serious illness, you may feel overwhelmed and unsure.  Often clients can decrease some of this stress by becoming actively involved in their medical care.  By asking questions and learning about your new diagnosis, you may feel  more in control of your treatment options.  Below I have listed ten questions you may find helpful when talking to your medical providers. 

I also suggest keeping a notebook or journal for all your medical information.  You can write down the contact information for each of your medical providers, information about tests you have received and the results, medications and side effects, and any symptoms you may be experiencing.  Having all this information in one place will help you and your caregivers when visiting your healthcare provider.  The notebook may also be a place you can write down questions between appointments, so that you remember to ask when you are in the office.

 

10 Questions You May Want to Ask Your Doctor (when first diagnosed with mesothelioma)

1.  What type of mesothelioma do I have?

2.  What is the stage of my mesothelioma and what does that mean to me?

3.  What are my treatment options?

4.  What treatment options do you recommend and why?

5.  Where will I receive my treatment?

6.  What are the risks of the treatments you suggest?  What are the benefits?

7.  What kind of side effects may I experience from my mesothelioma treatment?  How may they affect my daily life?

8.  What can I do to prepare for mesothelioma treatment?

9.  Should I consider participating in a clinical trial?  Where do I find information about current clinical trials?

10.  What can I expect based on my diagnosis and your experience with mesothelioma?

 

You may want to add additional questions to this list and to continue to ask questions as your treatment progresses.  Remember that visits to the doctor are often brief and it has helped my clients to be prepared.  You may also find it helpful to bring a loved one or friend with you to your appointments (both for support and to help understand all this new information).



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James Hardie Executives Banned and Fined

Breaking news about James Hardie executives being banned and fined in regard to breaching the Corporations Act when creating the asbestos compensation fund in Australia.  This is a controversial ruling in the community of those who lives have been affected by asbestos.  Victims of mesothelioma, lung cancer, and other asbestos-related diseases don't feel this punishment is enough; and I agree.  My opinion is these highly paid and high power executives won't feel this punishment nearly as hard as the victims of asbestos exposure who may receive little or no compensation.


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What Not to Say to Someone With Mesothelioma or Lung Cancer

When a loved one or a friend is diagnosed with mesothelioma, lung cancer, or other type of cancer, you may have a difficult time finding the right thing to say.  You may have good intentions of being sympathetic and supportive, but sometimes our words can have the opposite affect.  Researchers have found that our well meaning statements sometimes cause our loved one to shut down and at times feel worse.

Below are the six common sayings to avoid and some suggestions for what to say instead.  Adapted from Psychiatrist Jeffrey Knajdl, director of psycho-oncology services at Creighton University (Omaha, Nebraska):

 

1.  Avoid saying:  "Everything is going to be all right."  – instead try:  "I'll be here with you and we'll make it through this together."

2.  Avoid:  "I know how you feel." – try:  "How are your mood and spirits holding up through this?"

3.  Avoid:  "Try to keep a positive attitude, relax, and avoid stress.  It can help you heal." – try:  Asking what you can do specifically to help your loved one.  If they are worried about finances, help them get their finances organized.

4.  Avoid:  "We can beat this." – try:  Reminding your loved one that you are there to care for, support, and make them as comfortable as possible during treatment.

5.  Avoid:  "Now, now, don't get yourself all worked up." - try:  Offering the comfort of your presence or a hug.

6.  "Congratulations, you're done with chemo (or radiation)." – try:  Giving the person a chance to express how they are feeling by asking open ended questions.

 

Remember you don't always have to know the right thing to say.  When you don't know what to say it's okay to show your support in silence.  I've had clients tell me it's okay to actually say "I don't know what to say, but I love you and support you. "  Our job as a loved one and a caregiver is to listen and let the patient tell us how best to support them.



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Distribution plan for miRview meso test (Mesothelioma diagnosis test)

Rosetta Genomics (the developer of the test) and Warnex Medical Laboratories (a life science company that provides services to the pharmaceutical and healthcare industries) announced an exclusive distribution agreement for Rosetta's diagnostic tests.  One of these tests is the miRview meso test which uses microRNA molecular technology to differentiate mesothelioma from other cancers in the lung.  The use of this new test could mean more accurate diagnosis and more efficient  treatment options for mesothelioma patients. 

 

As a provider, I find myself hopeful when reading about new research and diagnostic tools for mesothelioma and other cancers.  I feel we are getting closer to better diagnostic tools, more effective treatments, higher quality of life, and my clients living longer.  I look forward to hearing more about this new test and the implications for the mesothelioma community.



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New technique can help diagnose mesothelioma

A new technique may help clinicians hone in on a diagnosis in patients presenting with a pleural effusion of unknown cause. The study, led by principal investigator Y.C. Gary Lee, Ph.D., appears in the September 1 issue of the American Thoracic Society's American Journal of Respiratory and Critical Care Medicine…….


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New Test May Diagnose Mesothelioma More Effectively

Researchers at Oxford University have developed a test that may diagnose mesothelioma more effectively.  Dr. Helen Davies worked on the research and claims it may be a way for medical providers to diagnose cases of mesothelioma earlier.  This could benefit the mesothelioma community in several ways:  medical providers may be able to diagnose earlier and begin appropriate treatment, victims may experience better quality of life and increased life expectancy, and claims for worker's compensation may begin earlier.


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